Saturday, April 19, 2014

Raising ourselves to be warriors: The Water Polo Match


My brain lit up like a roman candle last night at my daughter's water polo game.

Their team got creamed--they expected to get creamed because they are a young, tiny team of about a dozen players from a 2A school that opts up to play at level 3A; the other team, XXX, is the state champ, has about 50 seasoned players and is most definitely a 3A school.

The girls fought hard and their opponents played a really awesome game. This was all to be expected from both sides of the pool. My daughter has played with some of those girls in club tournaments and really likes them. In fact, they are practicing for the Junior Olympics team right now as I write this.

All in all, our team took the beating pretty well, and we had much to discuss on the long drive back home (the opponent's pool is about 1.5 hours away from where we live). There were some bad calls and some unnecessary roughness but, ultimately, our girls accepted the simple reality that they were outmatched. There were churros from Jack in the Box later and lots of music played on the hands free (while I opted for my noise cancelling headphones and back-to-back episodes of Alton Brown's podcast). Eventually they all crashed and had to be woken up at 10:45pm when we finally got home. Ah, sweet youth.

I needed the calm humor of Alton Brown NOT because I was driving noisy teens home from a polo game, but because the winning team's parents were HORRIBLE, and I needed some recovery time and space.

There were about 50 of their fans to our 5 fans. We were SURROUNDED. They mocked our girls relentlessly, in full voice. They repeated some of our girls' field talk, a common form of communication between players, but in condescending voices. They repeated loudly, "Well, this is a ridiculous blow out!" or "We are just kicking their asses to the curb!" with gleeful voices edged in arrogance. They laughed when our goalie could not single-handedly fend off fast breaks that our defense was not fast enough to thwart (and they were trying!).

Yeah, that's right... our 14-year-old goalie, who just learned how to swim and started playing polo officially one month ago, and who is now going to play on a Junior Olympic team this summer, which culminates in a tournament at Stanford this August. Yeah, go ahead, bash the newbie who shows MAJOR promise, why don'tcha?

It was like these people were drunk. (I finally had to look behind me to check. What did I find? Obese, ugly, poorly dressed, toothless White Trash. Parents. Parents behaving badly.)

At one point, I gave one of them the stink eye. She just stared back at me innocently, shrugging "What?" with an evil little glimmer in her eye. Bi-otch.

I texted my husband: "The XXX team parents are shitbags." He texted back: "F them."

I was sitting next to one of the parents from our team, a very calm and collected individual. He was visibly aggravated and even embarrassed, but not by our girls, who were fighting the good fight (they were awesome, actually, we were all of us very proud of them, including the coaches), but embarrassed by how poorly the other team's parents were behaving.

Shitbags, indeed.

Not surprisingly, the worst offenders turned out to be the parents of the toughest girl on the team, who was penalized and ejected several times for drowning, swimming over players, rolling and other brutality offenses. We learned later from the girls and the coaches how she was playing especially dirty and should have been removed from the game.

I am the George Costanza of comebacks (meaning I am useless in this capacity!) and could only sit there and hold my head; I even recited the words "serenity NOW!"--made infamous by George's father, Frank--in a funny voice to myself to try to settle down my brain. All those nerve endings just lit up like sparklers, the strange cellophane-crinkly accompaniment in my ears just barely muting their harsh, voices. This is what happens when I become emotionally stressed. It doesn't hurt, but it's weird and impossible to ignore.

Which, in a way, is a kind of blessing, because it's an immediate message from the universe to "let go." (Hence the Alton Brown podcasts on the long trip home.)

Anyway, as we got up to leave the game (the final score was 15-0), I saw one parent still in the stands from their team who was not part of the bully pulpit behind us. He was not obese, ugly, poorly dressed, toothless White Trash, either. It was obvious he had come straight from work to watch his girl play. He had a soft, nerdy avuncular quality to him that said, "I love my kids and I know you love yours, too." He gave me a sweet, apologetic smile. Right on. There's hope for team XXX after all.

Still, because I'm not nearly as gracious as I ought to be, I shared my text with the head coach; he gave me a conspiratorial wink. Apparently this is the reputation of team XXX. 'Nuff said.

It also helped for me to hear from my daughter that her coach had said to the girls at the end of the game, "There is a reason we don't play like that," in relation to the other team's "dirty pool" moves, and the girls left the game understanding inherently that what he was saying was "integrity matters."

It's always better to keep it classy in water polo, as in life.

This is what the coach has said repeatedly across the four-year span of my daughter's career on his team, and the fact is: it's one of the reasons my daughter has been accepted by an NCAA Division I water polo team... because athletics are never about playing dirty. They're about playing smart, and teamwork and strategy, about knowing how to play an entire game without getting relief if that's what you must do. It's about jumping back in no matter how hard you lost because who cares about a mostly losing season anyway?

NCAA water polo coaches acknowledge this can be a violent sport, but they also drive home the message that it must be played with integrity. High school players with a reputation for dirty tricks (scratching, drowning, kicking, unnecessary roughness, swearing, suit grabbing) do find themselves struggling to find a team that wants them at the collegiate level. No decent coach there has the time or energy or inclination to train these bad habits out of future players.

The only thing that matters is that, wherever we are in life, we strive for our own individual and collective excellence; this is the interior battle we fight every day, not just as athletes, but as human beings.

In my mind, our girls took home the win for the night for that reason. They get it.

As for the other team's parents? Not so much. Their loss AND their children's loss.

The message in this for MSers takes a similar vein: you can give in to the dirty pool of MS, the relapses and trips to the hospital, the emotional hijacking and all the other shitty things that MS could deliver to you, without warning, at any given moment in your life. Or you could fight back by taking care of yourself, having a sense of humor, striving to get out of bed the next day to start again, aiming to be the whole person you are as much as you can make that happen. Sometimes it's a day when the score for us is 15-0 and MS has kicked our ass, but we can still honor our own efforts to beat it. TRYING MATTERS. We can still smile and say, "I'm still here, MS. I will live to see another day and then we shall see what the score is then, hmmm?"

I found out later that my daughter, upon hearing how poorly the team's parents had behaved, sent a friendly message to one of her friends on team XXX, which said, roughly... "Hey, it was a tough game last night, but we appreciated the competition and we learned a lot from you guys. Thanks! However, you might need to remind the parents in the stands that sportsmanship counts there, as well." The girl responded very kindly and respectfully and said she would pass on that message.

They are playing polo together on the same team right now, training for JOs. No hard feelings whatsoever.

My daughter has no idea that she shared this bit of insider info with the very daughter of the shitbags who were sitting behind us in the stands last night.

Hear that sound? It's no longer the crinkling roar in my head, it's me laughing at this interest curve in the road, proud that not only am I a warrior who takes stock in integrity, but I have raised one as well.

Sorry MS, but that's 15-0, in my favor, this time around.

Sunday, April 13, 2014

Nope. Didn't do it.


So I was all gung-ho to participate in two separate MS Walks this weekend. And didn't do either one.

I'm telling you, fatigue is a sum-bitch.

I got home from my vacation Monday night. Exhausted.

Tuesday I spent trying to catch up on basic post-vacay stuff like shopping, laundry, email, etc. Of course, everything now takes me a lot longer than it used to, and I was wiped out by the prior 14-hour travel day.

So Wednesday rolls around and I'm at the hospital all day with my mom who had major shoulder replacement surgery (she rocked it!).

Then Thursday rolls around and half my day is lost to previous obligations I cannot get out of, though by all rights I should not have been driving a quarter of the water polo team to a venue 2 hours away, especially since I've never been there and I was driving in city traffic. Thank goodness my daughter helped with directions; my brain fog and a migraine pretty much melted my cognition for the day.

Friday rolls around, I'm feeling slightly better. I get a few things done, get my hair done, which is a nice break, then I'm tending to my other daughter's preparations for her weekend of dance recitals. I looked around me, saw all the dirty laundry, the piles of clutter, the fridge without food, and my ridiculously messy office, and I just succumbed to the overarching wave of fatigue that's been holding me in its current all week.

Fugettabotit, there won't be no MS Walk for me this weekend.

Instead, I got up early yesterday, did my grocery shopping before all the rest of the people came, so I could focus on my list, take my time, and not get wiped out by traffic and the general sense of overwhelming I get when I go to the store anymore. Then I ran a couple of errands that were grossly overdue. Then I came home and did laundry and finishing unpacking (did I say I was behind?) and then I took a nap. I overslept from my nap and threw on new clothes, grateful my new hairdo from yesterday was still holding up as well as the day's earlier makeup... I was late for dinner with my MIL and BIL before my daughter's recital! Dag. Went to the recital, which was AWESOME but also EXHAUSTING, especially since my MIL takes so much energy to be around. Very grumpy, demanding, emotionally challenging. I had some problems with speech and doing math in my head when I went to buy flowers for my daughter. I hate that.

So today I'm up at a regular time, have done some laundry, revised my To Do List and have been tackling little this and thats all morning. Already I need a nap and it's not quite 11am. But had I gone to the MS Walk today, I would have been WIPED OUT before I even got there. At least my migraine is gone and I am feeling like my marbles aren't rolling out of my skull today, but the exhaustion is still leadening: my arms, legs, even the top of my head weigh about 100 pounds each, it seems. But I feel lighter knowing I made the right choice.

Thanks to my friends and family for donating and/or walking in my stead today. I guess I have to be fine with being the recipient and not the giver, something I don't always do so graciously or willingly. But this weekend was good practice in putting my health first and following my gut, and though I wish I could have seen friends out there on the path this weekend, I'm glad my day is wide open to a little bit of this and that.

Maybe related? A very well-meaning, lovely friend of mine revealed to me that she knew someone with MS, and that person worked out every day and did just great! Part of me is like, yeah, good for them. Sincerely. And part of me is like, hmm, I bet they didn't have mobility issues and this chronic fatigue that I have. And part of me is like, yeah, right, working out everyday is NOT the cure for MS, people.

This is why we need MS awareness across the masses. MS is not a muscular disease, nor is it a metabolic disease. Exercise and eating right make anybody feel better, but they won't cure MS, and for many with MS, what MS Unplugged hostess Deanna Kirkpatrick calls "the snowflake disease" because of its widely varied presentations, the idea of exercise at all is next to impossible. Even eating at all can be problematic for those with swallowing dysfunctions.

How is this related? Because we need to have more dialog with nonMSers to drive home these points. We need to have practice as MSers in educating people through these mischaracterizations of the disease.

I didn't really say anything in response because, guess what? I was too frickin' tired.

Monday, April 7, 2014

Join me for the SEATTLE AND/OR BAINBRIDGE MS WALKS THIS COMING WEEKEND!

BAINBRIDGE ISLAND MS WALK (TEAM || ROCK WALKERS)
Date: Saturday, April 12, 2014
Location: Starts at BHS and going through Winslow, as I recall (map online is not working)
Address: 9330 NE High School Rd, Bainbridge Island, Washington (BHS)
Site Opens: 9:00 a.m. - 1:00 p.m.
Opening Ceremony: 9:45 a.m.
Route: 2.5 miles

SEATTLE MS WALK (TEAM || BENAROYA RESEARCH INSTITUTE)
Date: Sunday, April 13, 2014
Location: University of Washington campus, Burke-Gilman Trail
Address: 3870 Montlake Blvd NE, Seattle, Washington
Opening Ceremony: 9:45 a.m.
Route: 4 miles

Links
Here's the link to the local team, the Rock Walkers. Go there, read the stuff there, click on Join Our Team or Donate to Walk MS. And here's the link to the Seattle Benaroya Institute Team. OR... you could go to my local personal page or to my Seattle Walk page to read what I have to say about the local MS Walk here and either Donate To Me or Join My Team.

I hope to nab a few friends to put in some time walking. It's so much fun and the weather is always nice. Donate or not at your discretion. I'm less about fundraising this year and more about teambuilding and building my support network. And heck, the more the merrier! So please consider helping a friend out so she doesn't have to walk alone, with the fire.

Tuesday, April 1, 2014

Walk with ME! An invitation for YOU, to join ME, in the battle against MS... it will be fun, I promise!


BAINBRIDGE ISLAND MS WALK (TEAM || ROCK WALKERS)
Date: Saturday, April 12, 2014
Location: Starts at BHS and going through Winslow, as I recall (map online is not working)
Address: 9330 NE High School Rd, Bainbridge Island, Washington (BHS)
Site Opens: 9:00 a.m. - 1:00 p.m.
Opening Ceremony: 9:45 a.m.
Route: 2.5 miles

SEATTLE MS WALK (TEAM || BENAROYA RESEARCH INSTITUTE)
Date: Sunday, April 13, 2014
Location: University of Washington campus, Burke-Gilman Trail
Address: 3870 Montlake Blvd NE, Seattle, Washington
Opening Ceremony: 9:45 a.m.
Route: 4 miles

Links
Here's the link to the local team, the Rock Walkers. Go there, read the stuff there, click on Join Our Team or Donate to Walk MS. And here's the link to the Seattle Benaroya Institute Team. OR... you could go to my local personal page or to my Seattle Walk page to read what I have to say about the local MS Walk here and either Donate To Me or Join My Team.

I hope to nab a few friends to put in some time walking. It's so much fun and the weather is always nice. Donate or not at your discretion. I'm less about fundraising this year and more about teambuilding and building my support network. And heck, the more the merrier! So please consider helping a friend out so she doesn't have to walk alone, with the fire.

Monday, March 31, 2014

National Multiple Sclerosis Awareness Month || American Cities Show Their Love

These images do my heart a lot of good.

Boston MS Awareness

Times Square MS Awareness

Salt Lake City MS Awareness

Seattle MS Awareness

Vegas MS Awareness

Chicago MS Awareness

Niagara Falls MS Awareness
Minneapolis MS Awareness

Sunday, March 30, 2014

National Multiple Sclerosis Awareness Month || Attitude is Everything, Part 3: Worry, uncertainty, permission to be grumpy and choosing the life you want


Here are more tips for overcoming the challenges of an MS diagnosis using a positive attitude.

(see Part One: Steel yourself, look away from the belly button and cut some cords)
(see Part Two: Gratitude, going outside, the Paradoxical Commandments and the New You)


7. Stop worrying
One of the most common behaviors that follows on the heels of an MS diagnosis is the seemingly incessant need to worry! Stop it! Others smarter than me have already addressed this bugaboo:


  • Worry is a cycle of inefficient thoughts whirling around a center of fear.--Corrie Ten Boom
  • Worry never robs tomorrow of its sorrow, it only saps today of its joy.--Leo Buscaglia
  • Our fatigue is often caused not by work, but by worry, frustration and resentment.--Dale Carnegie
  • It makes no sense to worry about things you have no control over because there's nothing you can do about them, and why worry about things you do control? The activity of worrying keeps you immobilized.--Wayne Dyer
  • If you know how to worry, you know how to meditate. It means to think of something over and over.-Joyce Meyer

Anxiety and worry are two things that really need to be addressed if you are going to move forward with optimism. They both take up way too much energy to ignore and may require that you seek out counseling to conquer them. Please do so, if necessary.

8. Learn to expect and to live with uncertainty.
People who grew up in truly dysfunctional households probably already have this skill in hand. I know someone who grew up with a loved one who was/is very likely bipolar, but their loved one refused to acknowledge it (which means their mood disorder remains, to this day, untreated).

My friend's childhood was a series of days in which he walked on eggshells in his own home. Talk about uncertainty. If he didn't walk on eggshells, he could easily attract the wrath of his mood disordered loved one. This is how he moved through childhood... tentative, leery, expecting the worst while hoping for the best. Don't feel sorry for him; from this, he learned survival skills by way of necessity. Now that he has MS, he knows better than to demand that life be predictable, but because of the unfortunate circumstances of his childhood, he also knows how to keep moving forward anyway.

However, this isn't the case for a lot of people, I'm discovering as I move through different forums and hear people's different stories about how they are dealing, or not dealing, with an MS diagnosis.

Others can be way more challenged to deal with the loss of control that uncertainty possesses. You can't control anything in life (with or without MS)... not really. You can work hard and still lose your job. You can walk across a quiet street and get hit by a bus. You can try to have children over and over again without success. You can practice an art or craft and never master it. You can tell someone you love them a million times and still lose them because they don't believe you. You can make all the best laid plans o' mice and men and still find yourself in the center of a tornado where everything you cobbled together in your life is lost.

How you deal with this uncertainty depends upon how you relate to the way you manage time, energy and resources. The more flexible you are with your time, energy and/or resources, the easier it will be to manage uncertainty. But if you live by a rigid and inflexible schedule, if you still continue to "push through" periods of fatigue because you still believe you can (P.S., the secret is out! With MS, you can't), or if you are stingy when it comes to using your resources to guide changes in your life (being willing to spend more money for convenience products or pay for help, for instance), then you will be challenged to manage the uncertainty that comes with MS.

A suggestion here... make some plan Bs for specific situations in your life where you know that uncertainty can derail you. In example, make contingencies for days when you're hit by a wave of fatigue or a major migraine or temporary blindness in one eye. It may happen on that day when you had major plans (going to work, taking care of a lot of complicated errands, volunteering for your kids school, attending a critical board meeting). A plan B is your way to be part of those major plans even if you are waylaid by MS symptoms.

You could, for instance, work with your boss to make up for lost time at work or issue a protocol for rescheduling or reassigning tasks as a plan B.

You could ask for help with your errands from a handful of friends who have offered their support in the past; make a plan B phone tree, even, for such situations.

You could have a backup volunteer in place for those times when you can't do the school bake sale after all.

You could attend the board meeting via cell phone or iPad or get someone to record it or read your presentation in your stead.

Some of the most successful people I know in life are those who regularly anticipate the need for a plan B and use it when something happens. Not just MSers, mind you, but people in general who see the value of moving forward and not letting obstacles get in the way. You don't always have to jump over the hurdle, see? You can always walk around it, hire someone to do it for you, or push the darn thing over and walk ahead. There's more than one right way to do something.

This is not to say that a plan B will always fix a problem. Sometimes MS hits and there's nothing you can do. Then your plan B really needs to be one of surrender and acceptance; tomorrow will be another day to try again.

9. You don't have to smile all the time!
It's okay to admit that you feel like shit. It's okay to say, crap, I need help today. It's okay to recognize that your energy is nearly depleted even if you just got out of bed and, acknowledging this, go back to bed. You don't have to be Miss Happy Face all the time. That's perpetuating a lie. People who only see you has Miss Happy Face will not have an accurate portrayal of MS, which is a disservice to all who do suffer terribly at the hands of this disease. You have permission to feel grumpy. You have permission to cry. You have permission to be snarky and to call the disease nasty names. You even have permission to be annoyed by well meaning people who seem to argue with your diagnosis when they say "But you look fine!" when you are feeling Not-So-Fine-At-All.

You didn't ask for this. Still, it's up to you to decide how much grace you want to apply toward managing it. Some people are saintly about it, but most of us are more provincial... we get pissy or depressed or disappointed. And it takes its toll, for sure. People who put on the perfect happy face and never complain are repressing legitimate emotions and denying themselves an opportunity to deal with the dark side of their chronic condition. It's normal to feel negative emotions, even healthy. Don't shortchange yourself an opportunity to more precisely hone your coping strategies... by getting these feelings out in the open, acknowledging them and dealing with them, you are going to be a much stronger person. If you don't, you can only expect resentment, anger, frustration and outrage to consume you over time.

But you don't have permission to hurt others. Responding to their insensitive comments with information and education is a far better approach. And you don't have permission to lash out or to make comparisons with other people's pain or health issues. Comparing apples and oranges is never helpful for anybody. And you definitely don't have permission to use your condition as an excuse to make everyone else around you miserable. Nobody ever has the right to do that, no matter what's wrong with them.

Just be honest and keep it classy. If you are having a crap day, and somebody asks how you are, and you know they can tell you are having a crap day, just say it: "I'm having a crap day." Shrug. Move on. Do or don't do as determined by your body and your energy level. Don't make it everybody else's problem, just find help when you can, defer what you can, and tend to your situation until it turns...

Because with MS, it usually does turn itself around... three days of blindness in one eye forces you into bed and then, boom, you can see again, your headaches are gone and you feel great! We often focus only on our relapses but how often do we celebrate the end of relapses and the beginnings of remissions? If you have energy and you feel good, use it while you can! And if you have nothing to work with, well, then it's time to lie fallow until the pendulum swings back in your direction. For the vast majority of MSers, symptoms come and go and our biggest job is to just manage them. That means making the most of the best days and riding out the worst ones.

And finally...

10. Choose.
Repeat after me. I have MS, it doesn't have me.

People all around you are dealing with chronic illness, not just you. They are diabetic, they have asthma or terrible allergies or arthritis or fibromyalgia or mood disorders or a host of other health problems that can create barriers to living a full life. Find those people, ask them how they push through it all. The fact is that multiple sclerosis is two words, not a sentence! And you still have opportunities to choose how to live your life. You can set your terms. You can even revise your terms. It's all up to you, as long as you remember that you have a choice. You can choose to live with MS or be its victim. What will it be?

MOST PEOPLE WITH MULTIPLE SCLEROSIS
LIVE TO THEIR ANTICIPATED LIFE EXPECTANCY

Given this fact, why choose to be its victim?

Here is where choice is everything: you can choose to curl up into the fetal position and stop living, or you can choose to move forward hesitantly, or you can just decide, what the heck, I'm just going to go back to LIVING MY LIFE because there were always obstacles to whatever it was I wanted to be doing anyway, EVEN BEFORE DIAGNOSIS.

Even those with extreme disabilities can CHOOSE to continue to do what they can do, can CHOOSE to focus on ableness, can CHOOSE to keep moving forward as a whole human being. Watch the Special Olympics sometime. Be inspired. Even better... be empowered.

When you actively, consciously choose to move forward with positive energy and optimism, you are choosing to live an empowered life. An empowered life is lived when you are educated about your challenges and have come to accept them and persevere in the face of them.

MS is only one obstacle of many that can befall a human being. If you learn to live your life believing that obstacles are opportunities to learn, grown and improve, then even something as monstrous as MS can't keep you from living the whole, rich and interesting life you deserve.

Saturday, March 29, 2014

National Multiple Sclerosis Awareness Month || Attitude is Everything, Part 2: Gratitude, going outside, the Paradoxical Commandments and the New You

Here are more tips for overcoming the challenges of an MS diagnosis using a positive attitude.

(see Part One: Steel yourself, look away from the belly button and cut some cords)

3. Express gratitude.
When you consciously count your blessings (I mean daily), you reset your focus to looking for the good in the world. This is not a one-way ticket to Pollyanna-ville, people. It's retraining your attitude. The world can throw its worst possible ever crap at you, and you can't control that. But you CAN control how to deal with it. And attitude is how that happens.

Take a journal (or make a digital journal) and spend 5-10 minutes a night sharing what you are grateful for. Need prompts? I have included a list of prompts below. We often forget all the awesome things that we encounter in the course of a day; a short list makes these easier to recall.

List of Gratitude prompts (feel free to cut and paste onto a sheet of paper and insert into your journal)

  • Identify people who made me smile or laugh or feel great today... and share why
  • Describe something beautiful you encountered in nature today
  • Did you notice any "missing" symptoms or side effects today? Celebrate them here!
  • What or who inspired you today? 
  • What sensory experiences were pleasurable for you today? Food, fragrance, touch, music, imagery, textures, sounds, spoken word
  • What media experiences were pleasurable for you today? Movies, television, podcasts, online activities, games
  • What social experiences were pleasurable for you today? Face time with friends, silliness online, family togetherness, special occasion or holiday, interaction at work, conversations with perfect strangers
  • What physical experiences were pleasurable for you today? Physical therapy, walking, trip to the gym, yoga class, bicycle ride, dancing, work
  • What soulful experiences were pleasurable for you today? Meditation, creative expression, attending a holy place, chanting, prayer
  • What terrible things have happened elsewhere that have made you grateful for what you have today?
  • What did you do today that made someone else happy?
  • What did you make today that was original? Cooking, artistic composition, gardening, construction
  • What places did you visit today which inspired or nurtured you?
  • Name one simple pleasure or success you encountered today... could be a "good hair" day or hitting all green lights on the way to an appointment or seeing the trees budding for the first time
  • What parts of your body, mind or soul worked extremely well today?
  • What relaxation activities helped you today... could be yoga or listening to music or taking a lavender bath or even having a martini or going to a comedy club, as long as it left you feeling better afterward
  • What do you like about your house today? your neighborhood? your town? your region? your state? your country?
  • What animals left a positive impression on you today?
  • What do you have today that you cannot live without? 
  • What gifts were given or received by you today?
  • What challenges today gave you insight into your inner strength? 
  • If you had a really rough day, try to find one good thing that happened all day. Big or small, write it down and tell it "Thank You."
  • What activity did you do today that you feel you are not good at, but you enjoyed anyway?
  • What challenged you today and how did you overcome that challenge (if not completely, then partially... making an effort and failing is STILL progress, after all)
  • Did you experience a triumph over some aspect of your MS today? What was it?

4. Go outside and play.
Great advice NOT ONLY for children. Fresh air, sunlight, even the diffuse light that presses through overcast skies is nurturing for your mental health. Dress for bad weather. Just do it. Even if only for 5 minutes. Or if you can't go out in it, drive in it. Ride in it. The point is to leave your house, even if you just go sit on your back porch.

Being out in nature daily (or even just leaving your house to go to the store!) is really crucial to keeping positive. It's a huge mood booster. It means that we might have to clean up, make ourselves presentable, which also has the impact of making us feel more put together, like a good hair day. If you're having a good hair day, do you stay inside? No! You go out and show it off!

I always used to cringe at the quote that a woman need only put on lipstick to feel better, but now I know the inherent truth behind that idea: if you prepare to go out into the world, you WILL go out into the world. If you hang around in pajamas all day, what are the chances? Next to nil.

Related to this are two other dynamic options for MSers:

EXERCISING is hard when you are fatigued and/or in pain. Find even the lightest exercise possible and just do that. It's still better than not exercising at all. If you find yourself sitting all day or laying on the couch, and you have mobility, get up and walk around. Break up your idleness with trips to the laundry room to do a load or two, a trip to the kitchen to put some dishes away, or a trip to the bedroom to make the bed and put stuff away in your closet, or a trip to the mailbox, or a trip to the backyard to pull up some carrots. Find an activity and DO IT. I would rather do any activity with earbuds crammed into my head, listening to comedy podcasts, so that's one way I get myself going.

The point is to mix things up so you aren't prone and bedridden unnecessarily. Many MSers cannot move about, for sure, but many CAN, yet don't. They are afraid to, because they anticipate pain, discomfort or unpleasant side effects getting in the way. I know I hate to imagine going for a fast walk where there isn't a bathroom nearby. I've been stuck out in the middle of nowhere with a major urge before, and so I either walk in parks or downtown where I know of public restrooms, or I go to the woods and walk and, well, pretend that I'm a bear when nature calls and go off trail. (Haven't been caught yet.) Fanny packs, however unfashionable, are useful for preparing for this, by the way.

I'm not asking you to go out and run a marathon here. I'm saying, okay, if you feel like you need to stay where you are because you have digestive problems, then walk up and down the stairs every hour. Do some spinal twists. Practice some breathing exercises. Lift some canned goods like weights while sitting and watching TV. Go out in the garage and jump rope, counting as high as you can until you can't jump anymore.

JUST. DO. SOMETHING.

PLAYING GAMES is a better way to view activity for me. I hate exercise and the idea of the gym, but I love games. I'm more likely to exercise if I'm playing volleyball or trying jumprope tricks or challenging myself with Wii yoga or going for a swim at the beach or meeting my husband at the pickleball court. I'm headed to Hawaii soon and think I will give paddleboarding a shot.

Other kinds of games matter, as well. Board games. Game shows. Brain games played on your iPhone. Jigsaw puzzles, crosswords, Sudoku, card games. Yard games like lawn bowling or bean bag toss or badminton. They could be social games or solo games. They could be games that take forever or are ongoing, like Dungeons & Dragons, or they could be quick dice games played at a local coffee shop while you wait for someone to join you.

Games are about having fun, testing your skills, flirting with chance, overcoming obstacles, creative problem solving, laughing and achieving escape.

5. Shut up and get out of the way.
Sometimes we can be our own worst enemies. Try to notice any negative self-talk you engage in. It could be something you mutter under your breath, or it could be a self-deprecating comment you make in jest before a group of friends, or it could be a "voice" in your head telling you that you aren't good enough, healthy enough, smart enough, worthy enough, etc. Stop doing this. Consciously, even vocally, express it like this: "Stop it!" Don't judge yourself, don't feel bad if if happens. Just acknowledge it's there, then tell it to leave. You will, eventually, stop the negative self-talk once you are aware of it.

Getting out of your own way is a similar activity. We often stand in our own way, mostly out of fear. We decide that we can't exercise because it will hurt, for example, or we decide we are too old to learn something new, or we decide we aren't the best at something, so we quit doing it altogether. What we need to do is just do it anyway. Go to the gym anyway or take that walk. Go lightly. Don't overdo it. Just do it. Or... take a beginning foreign language class or start playing a new instrument. Expect failure. Expect to learn differently from your younger counterparts. Just do it. Or... learn to accept that we can't be perfect at anything and remember that it's the journey and not the destination that matters. Do your best at a task, and practice admiration for others who do it better. Share what you know with someone who is not as good at you.

Every day, you can decide you aren't strong enough or smart enough to go after something you want. What's stopping you? Well... you! Tell the hesitant You to move out of the way and just go for it anyway. Expect to make mistakes. Laugh at yourself if you do. Give yourself a brownie button later, regardless whether your efforts are met with success. Trying matters.

Inertia is a huge part of passive living, and it's often accompanied by fear. If there's something you are afraid to do, write it down. In example, write: I AM AFRAID TO ASK FOR HELP. Then, speak it out loud: "I am afraid to ask for help." Then write: I AM GOING TO ASK FOR HELP ANYWAY. Then, speak it out loud. "I am going to ask for help anyway." Do this enough times and you will find you are less and less afraid to ask for help and more and more comfortable with actually doing so.

I love the Paradoxical Commandments, which are related to this idea that we should just look askance at fear and do the things we are driven to do anyway. Check them out here.

6. Let go of the Old You, embrace the New You
The pre-diagnosis You is no longer You, it is a figment of your past experience which may lend great wisdom to things you do now or will do in the future. However, it is no longer You. You are a new person, reborn with a new reality.

No, you didn't get to pick the reality, but so what? When someone loses a loved one, they are also a new person, and they didn't choose that either. This is LIFE. There are lots of things that happen to people unexpectedly, and they can all either SUCK or they can be life defining in a way that can be made positive, as long as you embrace the opportunities inherent in any kind of change.

MS is not an excuse to just wallow in the past and not move forward. Instead, you need to look at what this New You has to offer. Not just as a worker-bee or fulfilling any other role to any other person or organization. You very likely have had to step out of these arenas and/or roles partially or completely. But the New You has valuable insights, experience, ideas, talents that can still be applied toward making the world a better place.

Sometimes someone will say that an MS diagnosis can really be thought of as a gift. And when someone says that in an MS forum, they are sometimes shot down by others who think it's ridiculous that any kind of diagnosis for any kind of chronic health condition could ever possibly be considered a gift.

But I do think that change is about opportunity as much as it's about loss. Yes, I have grieved over the idea that many of my life's dreams might be wiped out by this diagnosis, because that is what you do when you grieve. You let loss and impermanence roll around in your heart a while until something comes and flushes it out and then you move on. That something is usually an amalgamation of the highest of concepts: hope. Hope does return after loss, and if you can nab some, you need to stitch it to your soul so as not forget that it's always there, just in case.

Hope and dreams... these are not just abstractions, they are the seeds of anything we can aim for, goals, a horizon we build for our life's path. We just have to harvest them wherever we can and plant them when the time is right... usually after a period of fallow grief.

Why not embark on your life's path by making yourself a revised Bucket List of things you want to do or experience, places you want to visit, people you want to meet or spend more time with? You'll be surprised to find that the vast majority of things on this Bucket List are still achievable even if you have MS. Maybe some will not be 100% attainable--like, say, climbing a mountain--but you might take a training course in how to do this, or you might shoot for a similar goal, like hiking in the mountains overnight. Wouldn't it still be cool to hike in the mountains overnight, even if you couldn't climb the mountains outright? I think so.

The act of surrendering to a new reality can be challenging, I know. But once you realize that holding on to the past doesn't change the present, you'll encounter a sense of liberation. Clinging to the Old You is rather like tossing yourself into a huge bonfire, eating up all your energy, leaving only a few pathetic ashes to witness you were ever there. Don't do that to yourself. Step away from that fire, hold on to the flames that are perpetually kindled in your heart, your mind, your gut... you have everything you need within you to use these little flames to inspire new directions for the New You. It might mean getting some help from a counselor or therapist, but so be it. If you can arm yourself with the powers that the New You holds, you can live a ginormously enriching life.

Coming tomorrow, Part 3: Worry, uncertainty, permission to be grumpy and choosing the life you want